Our Sweet Bee

SCRABBLE TILE NECKLACES customized jewelry with a purpose

Thank you for stopping in and checking out my scrabble tile jewelry!

100 % of proceeds help build a home for two children with Sanfilippo Syndrome

Sunday, July 15, 2012

Our Sweet Bee! Brooklyn

Brooklyn modeling for me!

Posted by Joan Boyce at 4:27 PM

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Prices and info

Scrabble Charm ~ $5
Ball Chain ~ $5
Black Leather Cord ~ $5
Key Chain ~ $2
Bracelets ~ $8

Orders can be emailed to Joan at joankboyce@yahoo.com.
Choose the scrabble charm by describing which one you'd like and or attach your own photo or logo.

About Me

Joan Boyce: I'm a wife, mom and a grandmother who is passionate about God, family and life. I am an ordinary woman who serves an extraordinary God. Even when life throws a difficult curve, I realize that it's about the journey and finding joy in that place. Looking up and learning to praise Him in the storm. Seeking the treasures that are hidden in the darkness and finding the blessings!

View my complete profile

Build With The Boyce's

For more information about MPSIII or Sanfilippo Syndrome and our real Sweet Bee, Please visit: buildwiththeboyces.com

Brooklyn

Our Sweet Bee

Jayden

Sweet Big Brother

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Sanfilippo Syndrome

Sanfilippo syndrome is an inherited disease of metabolism that makes the body unable to properly break down long chains of sugar molecules called glycosaminoglycans (formerly called mucopolysaccharides).

The syndrome belongs to a group of diseases called mucopolysaccharidoses (MPS). Specifically, it is known as MPS III.

Symptoms

Unlike other forms of MPS, symptoms appear after the first year of life. A decline in learning ability typically occurs between ages 2 and 6. The child may have normal growth during the first few years, but final height is below average. Delayed development is followed by deteriorating mental status.

Other symptoms include:

Behavioral problems
Coarse facial features
Diarrhea
Full lips
Heavy eyebrows that meet in the middle of the face above the nose
Sleep difficulties
Stiff joints that may not extend fully
Walking problems

Treatment

There is no specific treatment available for Sanfilippo syndrome.

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Thank you for stopping in and checking out my scrabble tile jewelry!

Sunday, July 15, 2012

Our Sweet Bee! Brooklyn

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